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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
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About The Rory Belle Foundation
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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
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Scientific Publications
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Drug Repurposing, Explained
Potential Therapies & Research Explained Teri DeClercq 8/26/26 Potential Therapies & Research Explained Teri DeClercq 8/26/26

Drug Repurposing, Explained

What if a medication that already exists could help with NARS1 Disorder? Watch Rachel explain drug repurposing and the research behind three promising candidates. For each one, take away a family guide and a clinical reference to share with your child's doctor.

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Asparagiini ja NARS1: Opas perheille
Potential Therapies & Research Explained Teri DeClercq 4/19/26 Potential Therapies & Research Explained Teri DeClercq 4/19/26

Asparagiini ja NARS1: Opas perheille

Yleiskatsaus asparagiinista NARS1:ssä, mukaan lukien mitä se on, miksi sitä tutkitaan ja mitä tuleva kliininen tutkimus Ranskassa pyrkii ymmärtämään. Saatavana useilla kielillä

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Tutkimustyökalupakin ymmärtäminen
Potential Therapies & Research Explained Teri DeClercq 4/1/26 Potential Therapies & Research Explained Teri DeClercq 4/1/26

Tutkimustyökalupakin ymmärtäminen

Meillä on paljon työkaluja tutkimuspaketissamme - opi niistä täällä.

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Review of Published NARS1 Literature - April 2025</span>
Potential Therapies & Research Explained Teri DeClercq 4/10/25 Potential Therapies & Research Explained Teri DeClercq 4/10/25

Review of Published NARS1 Literature - April 2025

Join genetic counselling student Sammy as he reviews the published literature on NARS1 disorder, covering key research findings and insights into the condition.

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220